Tag Archives: mental health

disclosure.

The Truckee River wasn’t a softly babbling stream. The growl of its rapids mixed easily with the sounds of the park—if you were on the bridge standing over it, sometimes, it could drown out the playful yips of the dogs and the kids that chased after them.

In Reno, the sun was almost always out, illuminating the small white caps that bubbled as the Truckee flowed over the rocks beneath, racing its way off the Sierra Nevada that surrounded Lake Tahoe. It was pretty, the way it moved with abandon, like the river itself knew nothing would stop it in its path. I came down off the bridge to walk alongside it. I can see Gadget—her “go-go-Gadget” legs swiftly taking her on her always-jaunty stride ahead of me, until I told her to wait. She peered curiously at the yellow tubes coasting along the river, the limbs of the riders flailing as they rode down through the park.

I was not alone that afternoon, although it certainly felt like I was. It had felt like that for awhile, since moving 2,000+ miles from home, not meeting anyone I could connect with, and being unable to find any kind of good work, since the recession had hit Nevada much harder than it had here. Days felt endless, and sunset brought instant cold and sleeplessness, while my ex-husband rested peacefully next to me.

Darkness did not lift. I would drag myself out, hoping the sunshine would do something for my spirits, like it usually did. But tears always came, sometimes torrentially. Most of the time, torrentially. I was trying to ignore the wave of them building in my belly that afternoon, strolling alongside the river, watching.

As we came along to the underside of the bridge, two giant signs came into view, pinned underneath it. The warnings were clear: Wear lifejackets and stay in tubes. Strong currents and rocks create footholds. People had drowned here.

Oh.

That would work.

I could just jump in, right here, and—that would work.

It wasn’t the first time something came into my head that felt like it didn’t belong there. The kind of thought that felt like it came from somewhere else, some dark spot, but it was simple enough, blunt enough, that it made sense. I remember feeling sick, and refusing to let a single word slip from my mouth lest it get dissolved into sobs. And I didn’t know how to tell my ex-husband that evidently, I wanted to die, and my brain showed me a way to do it without me having to ask.

It has been a long, long time since Reno—it’s been what feels like three separate lifetimes. My marriage ended; my sweet Gadget gone over the Rainbow Bridge; promotions; developments; realizations; unbelievable traumas; highs that I thought would last much longer. But my cocktail of antidepressants//anti-anxiety meds and regular therapy has remained constant. And that afternoon in Reno is one of the biggest reasons why. It took a lot of work and a lot of time to feel okay, to learn how to combat racing thoughts and the ever-present Scumbag Brain.

Maybe I’d never be truly fine. Maybe that was just the hand I was genetically dealt. But I thought I was okay.

Fast foward a couple of years, and now, I’m in my early 40s. And I start to notice things. Excessive sadness in the two-ish weeks before my period. Numbness around things that hurt my feelings and a blink later, unbelievable rage. Some fixation on things I should have been able to move past.

Perimenopause, amiright? Maybe I needed bloodwork. Maybe it was my birth control pill—I’d switched to a progestin-only pill after I developed a blood clot after surgery, and maybe that was influencing this. So, to my GP and GYN I went. Full explanation of unstable moods in relation to my cycle. Two sets of bloodwork to check hormonal balances — turns out, yep, welcome to perimenopause, JD. Three sample boxes of a new BC pill that is designed to alleviate symptoms of PMDD, which evidently, I’ve had since I was a teenager. This should help. Give it the full three months to get into your system, okay?

Okay.

I do not know who I have been for the last month, but it assuredly is not me.

Wakeups at 3am and 5am. First sign that anxiety is dialed up a notch, for me. Literal trembling when reaching for my morning meds. Heart pounding madly against my ribs when going to the kitchen for coffee. “You’re okay. You’re okay. Everything is fine; there is nothing to be worried about right now.” But the usual mantra, the deep breaths that punctuate it, did nothing.

And then, the heaviness. The feeling that I only have one emotion, and it’s going to get so big that it swallows me whole. And then, it does.

“Guys? I don’t think I’m okay.” And I had ears attuned and eyes on me. Distractions in the form of happy hours, going to see cover bands, grabbing pizza. I’d laugh and forget about what was happening in my head. There was one night I laughed super-hard, danced with my sister-in-law, sang along loud, and when I got home, I cried so hard I couldn’t fall asleep.

But I just have to wait for this to kick in, right? It’s only been about three weeks. These meds are supposed to help regulate my mood. I’m sure they will. It’s just perimenopause. I have to be patient, right?

But patience only brought the type of blackness I hadn’t seen in years. Or thought in years. And suddenly, during one excessive bout of it, there it was.

Maybe now it’s time. Maybe you’ve always just been waiting for it to be time. Maybe now, it’s time.

So blunt. So simple. And it made so much sense. I’d thought it when I was watching a band a week or so earlier: Maybe I’m not going to beat this. Maybe it’s going to take me.

And maybe now, it’s time.

I realized I’d started buying food I’d be excited to eat, only to cook it and know there was no way I was going to eat it. A minor work snafu sent me stomping away from my computer, looking for something to punch. I cried all day, all night, or both. And when I wasn’t crying, all I was thinking about were things that hurt me way more than they should have. I was beside myself with thoughts of revenge. Awful things that had been said, done, just teeming in my decrepit brain. I literally screamed for it to just stop into the towels on the rack in my bathroom.

I took walks, listening to a funny audiobook I was enjoying, only to stand on the apron of the driveway, shaking, thinking I didn’t want to go back inside. I tried to remind myself I didn’t have to think any awful thought that popped into my head, and it was like something inside me responded with pure derision.

I didn’t want to write, because all I could write about was how fucking terrible I felt, and I was exhausted enough by just having to think about it. I don’t remember the last time I even started writing a poem. Inspiration is as dead as I feel.

“I don’t know what’s happening. I don’t know how to stop this,” I said to my therapist. “I feel like an unmedicated teenager. I don’t remember the last time I felt this bad.” He told me I needed to speak to my medication management team to see if there was another antidepressant or something else I could use while I waited for this BC pill to “kick in.”

I looked forward to my weekly video calls with Kelly, only to burst into sobs five minutes in, explaining that the things I was thinking were so bad that I couldn’t even say them out loud.

“But you don’t really want to do them,” she assured me. “There’s part of you that’s still in there that is never going to let this win.” And that’s when I said it.

“But I don’t actually know. These horrible things… I don’t know where they come from, but they just make so much sense. It feels like…when I was living in Reno.”

I made an emergency appointment with my mental health nurse practitioner the next day.

Here’s the thing: I’m not sure anybody is ever really looking out for us, as women. Not that medical professionals don’t want to help, but there are a lot of things that get glossed over when we start describing symptoms they’ve all heard before. Case in point: When I first sought out BC options, I told my previous GYN that I was nervous, because I have mood disorders. The original pill I took was amazing, and I was so sad to switch to progestin-only pills when I developed the blood clot.

Here’s what no one told me before the NPs I saw: Progestin-only pills have a tendency to cause depression and anxiety. There is a very high chance they’ll make it worse if you already have a history of them. I didn’t learn this until two years after I’d been taking them—and thinking about it, my moods have consistently declined over this two-year period. Maybe it makes a little more sense why I can’t seem to get over things that wouldn’t “normally” bother me this much. Maybe it’s no surprise that things started feeling significantly worse when lower hormonal levels from perimenopause kicked in.

Nobody told me to watch for symptoms of worsening depression. The only thing I was told was to wait it out, especially once they saw the lower hormonal levels. It was my MH NP who literally ordered me to stop taking the BC pills that day. “Your [psych] meds have been working for 10 years,” she said. “You’ve done great on them. There’s no reason they’d just stop working now. This is coming from the birth control. You can’t wait another month and a half to see if it maybe gets better.”

At her behest, I made an emergency appointment with my GYN, and—yet again—met with a NP who seemed to know much more about BC options and mental health issues surrounding perimenopause than any other doctors I’ve seen. She was able to advise me about different options and helped me pick some new things that I’m going to be trying out in the next few weeks. “We’re going to get you better,” she said, just before she left the exam room.

Nurses save lives, man. For real. Unsung heroes, every single one of them.

Tomorrow marks two full weeks of being off hormonal BC. I’m definitely not fine or even okay yet, but it is “better.” I’ve cried only about once per day, as opposed to all day long. I can focus more during work. I’ve been hungry enough to eat. I’m still very frustrated at the amount of thought I’m putting into people and things who don’t deserve it, but at least I’m not screaming into the void begging it to stop. I still spend too much time alone, but I’ve stopped sentencing myself to it as some sort of unforeseen prophecy. And the things I don’t want to say out loud? They’ve shrunken down to just murmurs, sometimes barely audible, and they’ve stopped making sense.

This has been the worst I have felt in more than 20 years. And I was just going to try to stick it out, as if that was any kind of treatment plan. Well, it’s perimenopause, and like, all bets are off during that, right? Turns out, maybe not so much. Turns out, women need more advocates and more information about what happens to us as we get older. I literally cannot believe how bad things got, and how I had no idea it was about to happen.

What this has done is encouraged me to do a little more digging. Some recent research showed me that multiple women who have a history of GAD and MDD had their symptoms explode when taking this same BC pill. They explained “buckets of sadness” they lived in every day, with no reprieve from reliable remedies. So many talked about how they felt like someone else, and that their actual selves fell further and further away from them. It did not get better for any of them until they stopped. Most of them said they didn’t feel back to normal until at least a month later.

I’m definitely not the most patient person, especially about myself. These two weeks have felt endless, like those days in Reno, but at least “sticking it out” at this point is already helping me see signs of improvement.

But I can’t reiterate enough how important it is to be honest. Even when you think you have everything under control. Even when you think you have someone in your corner already. Especially when you don’t want to say things out loud. It is terrifying to not feel in control of your own thoughts, to not know who’s voice you’re hearing. We’re taught, as women, that we’re just “emotional,” as if that’s some kind of explanation, as if that’s something we need to learn how to wrangle—as if it’s actually possible. It isn’t always—especially when you’re being led down a route that’s going to bring you to a cliff that crumbles underneath you. There’s a huge difference between patience during a rough time and full-on suffering. It’s okay to admit when you can’t see it.

And just for the record, Kelly was right. There is still very much a part of me that wants to win.

road trip breakdown.

Last week, I escaped.

Flights had doubled in price. The train was nearly as expensive, and the trip home was offered at a before-sunrise hour. Fiona ((my car)) sat parked at the curb, reminding me she’d safely brought me to and from North Carolina a few years ago — and if I could make a 12–13-hour drive alone, 6.5 to Buffalo was absolutely doable.

I shoved what I needed into bags, said goodbye to the boys ((it was the first time I’d left them longer than overnight)), and took off. My phone, which I dropped in a parking lot last summer and shattered the back of, has been clearly on its way out. The battery drained quickly, even when it was plugged in in the car, so I made sure to buy a new portable charger and bring my iPad, just in case. I always pride myself on being super-careful and diligent about packing, even if it tips me over into neuroticism. Which, let’s be honest, it doesn’t always take all that much to do.

The first three-ish hours went great. Very minimal traffic, and my phone was ON it with iTunes on shuffle. Near Binghamton, I decided I’d get gas and take out my portable charger, since my phone had less than 20 percent of its battery power left. I hooked everything back up, got back on the road, and missed the entrance to the highway. GPS rerouted me through this woodsy service road, and when I hit a bump, my phone and the charger went flying off the stand. Great. I pulled over when I realized I couldn’t find the charger. There I was, basically in the woods, kneeling down next to my driver’s side, trying my hardest to peer under the seat and between the center console to no avail. “What the f—how does something disappear in the front seat and well of a car?!” I exclaimed to no one in particular. My frustration with this notion was longstanding by this point: For some reason, I feel like things have been mysteriously leaving me. Jewelry that falls off a dresser into the unknown. Socks that go to the laundromat with mates and come back single. T-shirts and bralettes that are literally worn one day and gone the next. Not to mention fabric scissors that have been missing for the entire two years I’ve had them, still in the package. Oh, and lovers//friends, because of course.

Eventually, I huffed back into the car, and saw the charger sitting on top of the bag in my passenger-seat well. Finally. I hooked it back up, got the GPS and music back on, and was back on my route. The entrance ramp to the highway soon came up, and just as I was using it, a small, reddish-gray squirrel flounced out from the greenery. “Oh no,” I thought. “Oh, please don’t go now—” To my horror, I watched as it ran into the road, narrowly missing my driver’s side tire. It didn’t miss the passenger side.

I have always, always been terrified of hitting an animal. It’s definitely one of my biggest fears, since I was never sure how I’d actually recover, and I’ve had some close calls that have left me shaking. There’s also a family of squirrels that live in the tree on my front lawn — they’ve started to come to the window and wait when they see me with a container of nuts. I’ve seen two generations of babies.

And that was all I could think of as I felt the squirrel under the tire and looked back in the rearview to see it rolling off onto the roadway. I was screaming by then. Full-on, feral, hand-over-my-mouth howling that I wasn’t in control of. Sobbing apologies over and over. When I realized I was fully losing it, I pulled off the highway and into the parking lot of a dilapidated, likely abandoned diner. No one was around to witness my absolute hysterics. I don’t know why, but I started to think about Nico, and the way I lost him quickly. All I wanted was to hug my cats, and they were so far away. Instead, I pulled out my phone and texted two of my friends. I took huge, deep breaths until my hands stopped shaking. When I was finally able to get back on the highway, I tried not to look at the dead animals on the side of the road, hoping beyond belief that I wouldn’t add another one. I wished I had someone with me.

I was slightly dazed for the next hour or so, turning my in-car rock concert off and switching to my favorite podcast. Traffic built up miles before the State Fair exit. When I looked at my phone, it had two percent battery life left. For some reason, both the car plugin and the portable charger were doing nothing. I pulled off again into a rest stop, quickly texting Kells to let her know I had to make a pit stop. I was in the middle of texting someone else to let them know when the phone went black. I dug around in my bag for a phone charger, plugging it into the car port. Nothing. I pulled my phone case off and attached the portable charger. Still nothing. Okay, not a huge deal, I had my iPad for this very reason. I opened it, went into Google maps, and saw “No Internet Connection.” I tried for the next 10 minutes to connect from the parking lot before realizing I needed to go inside and see if I could find an outlet or some login info.

After another half an hour, I had pulled up directions for the rest of the route on my iPad and gotten my phone up to 12 percent after plugging it into a wall outlet and letting it sit on a cold tabletop. It was starting to get dark out. I got back into the car, noting that it was likely just a straight run to the exit, and left my phone off. No music to loudly sing along to. No podcast to giggle at. Just the sound of tires. After a few minutes, I looked down at the map on my iPad screen to double-check what exit number I needed.

No Internet Connection. This time, there was another type of screaming.

“WHY?!” I howled, to no one in particular. “Why does every single thing I ever try to do have to be so incredibly difficult? Why am I always alone to figure everything out?” And then, more tears. “I just keep going when things are always hard. I just keep going, like I’m supposed to. I have been struggling so much; I decided to be ‘brave’ and ‘get out of my comfort zone,’ like I’m supposed to. What am I doing wrong? What lesson am I obviously too stupid to grasp at this point? What is it that I am always doing wrong?”

I’m not sure who exactly I was talking to. I’m an agnostic. Maybe my therapist, who’s always asking what I can take away from these experiences? Myself, since I’m always preoccupied with keeping my mood up all the time? The universe, because there has to be something, right? I can’t really be this alone. It can’t really be that everything is working against me.

What I did know is that I couldn’t cry as hard as I wanted to, since there was no place to pull over. Eventually, my phone popped back into function and I was able to see that I needed exit 48. I was at 43. Dear gods, thank you. I’d been in the car for eight hours at this point. The miles stretched long between exits here, and just as I was creeping up to 47, all I saw were tail lights glowing like animal eyes in the dark. It was 9:30pm. On a Thursday. And I cried, again. My now-functioning GPS said 45 minutes, when it really should have been closer to 20. Semi-frantic texts from Kells came in once I took my phone off airplane mode, and I instantly felt bad for missing them. Eventually, I saw that road work had closed down most of the highway, and soon, I was weaving past tons of traffic cones and lights. Just when I thought the closures went past the exit, I saw a makeshift lane leading to the ramp. I was so tired at this point that driving around them felt unnatural. Like I was doing something wrong, again.

I made it to Kells’ complex at 10pm, a full nine hours after I left. I made sure to mop any stray tears off my face by the time she came down to help me bring my things inside.

“I was so worried something happened,” she said, when she hugged me. “I don’t know why, but I can’t stop thinking about what’s gone on…” and she referenced some abusive/dangerous behavior I’d been exposed to in the last few months. While it might have been a stretch—we did laugh about how ridiculous it sounded that someone might be following me on the entire nine hours—it really did solidify how well Kells knows me. It was like she was already tapped in on what was happening in my head. Maybe if no one else heard my outward breakdown alone on a highway in upstate New York, she had. All I knew was that as soon as she opened the door to the apartment and I could hear Riley barking excitedly, everything felt so much better. I’ve walked up the stairs to Kelly’s apartments to be greeted by happy dogs for so many years. This felt very much like home, even though it was far from where I live.

Later, when I flopped down on an air mattress, I went back to my outburst in the car. Maybe I was just tired. Maybe I was still sad. But overall, I was frustrated. Frustrated that it really does seem like everything is working against me a lot of the time. Frustrated that while I need my space and my alone time, it isn’t how I want to live the entirety of my life. And while I was so glad for my friends who had reassured me that I wasn’t a bad person after hitting that poor little squirrel, did I really not deserve to have anyone next to me? I had to drive nine hours for someone to hug me and tell me they were worried?

The rest of the trip was without incident. I stayed off my phone. We sat in the sunshine on the balcony until our shoulders turned pink. We went to the cool restaurant with the robotic waiters and the best Pad Thai ever. We sat in a beer garden next to the creek. We strolled along Lake Erie, visited the new Southern Tier Brewery, closed out a night with giant pretzels and espresso martinis at the NYBP. At one point, when I went to my car to get my dress for dinner, I realized this was the happiest I’d felt in probably six or eight weeks. There wasn’t a lot of time for me to ruminate on bad things, but there was plenty of time for me to think out loud to my best friend. Who gets me. Who I might literally be lost without.

But I’m pretty sure I’ll just fly next time.